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Advocacy & Survivorship

Information from lung cancer advocates and personal experiences shared by lung cancer survivors.

A Balancing Act: Managing Patients’ Expectations

By Leah Lawrence Posted: December 11, 2019 Many patients newly diagnosed with lung cancer have difficulty navigating the world of cancer when unexpectedly and unwillingly thrust...

Memoir Resonates with Oncologists and Patients with Lung Cancer

By Lori Alexander, MTPW, ELS, MWC How does a person with stage IV lung cancer live a meaningful life? That’s the question Paul Kalanithi explores...

From Patient to Patient Research Advocate: The STARS Journey

By Adam Mohrbacher Posted: December 11, 2019 With the rise of organized lung cancer patient advocacy groups,1 patients, advocates, and caregivers are now playing a larger...

Deb Violette, Lung Cancer Survivor and Advocate: Her Story

Posted: June 2017 Editor’s note: IASLC Lung Cancer News is committed to including the patient’s voice and experience of having lung cancer as part of...

STARS Patient Research Advocate Training Program Seeks Patients and Caregivers

By Adam Mohrbacher Posted: December 11, 2019 Patients with lung cancer and their caregivers are becoming more empowered and knowledgeable than ever. As a result, lung...

Profile of Advocacy: Shanghai Cancer Recovery Club

IASLC Lung Cancer News is pleased to present the following Q&A with the staff of Shanghai Cancer Recovery Club, an organization in Shanghai, China,...

Disrupting the Paradigm: Partnering With Oncogene-Focused Patient Groups to Propel Research

By Amy C. Moore, PhD, and Upal Basu Roy, PhD, MPH Posted: April 16, 2020 Genomic alterations drive more than 60% of adenocarcinoma cases of NSCLC.1...

Ellen V. Sigal, PhD: Leading the Cancer Research Advocacy Community

By Lori Alexander, MTPW, ELS, MWC® Ellen Sigal’s unsurpassed passion for cancer research advocacy was ignited 30 years ago after the devastating loss of her...

Motivated, Engaged, and Organized: The New Molecular Cohorts of Lung Cancer

By D.R. Camidge Posted: June 2018 Just as physicians and scientists no longer treat lung cancer as a single disease because of molecular distinctions, patient advocacy...

After the Consultation: Social Media, Inter-Patient Communication, and Clinical Trials

By D. R. Camidge Posted: October 2018 Between March 2017 and April 2018, nearly 20,000 new members signed up for the Lung Cancer Survivors Support...

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