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Advocacy & Survivorship

Information from lung cancer advocates and personal experiences shared by lung cancer survivors.

STARS Patient Research Advocate Training Program Seeks Patients and Caregivers

By Adam Mohrbacher Posted: December 11, 2019 Patients with lung cancer and their caregivers are becoming more empowered and knowledgeable than ever. As a result, lung...

Profile of Advocacy: Shanghai Cancer Recovery Club

IASLC Lung Cancer News is pleased to present the following Q&A with the staff of Shanghai Cancer Recovery Club, an organization in Shanghai, China,...

Disrupting the Paradigm: Partnering With Oncogene-Focused Patient Groups to Propel Research

By Amy C. Moore, PhD, and Upal Basu Roy, PhD, MPH Posted: April 16, 2020 Genomic alterations drive more than 60% of adenocarcinoma cases of NSCLC.1...

Ellen V. Sigal, PhD: Leading the Cancer Research Advocacy Community

By Lori Alexander, MTPW, ELS, MWC® Ellen Sigal’s unsurpassed passion for cancer research advocacy was ignited 30 years ago after the devastating loss of her...

Motivated, Engaged, and Organized: The New Molecular Cohorts of Lung Cancer

By D.R. Camidge Posted: June 2018 Just as physicians and scientists no longer treat lung cancer as a single disease because of molecular distinctions, patient advocacy...

After the Consultation: Social Media, Inter-Patient Communication, and Clinical Trials

By D. R. Camidge Posted: October 2018 Between March 2017 and April 2018, nearly 20,000 new members signed up for the Lung Cancer Survivors Support...

Lung Cancer Survivor Wins Trip to US NFL 2016 Pro Bowl

By Nicola M. Parry, DVM Lung cancer survivor Kathy Weber is an ardent ambassador for the International Association for the Study of Lung Cancer (IASLC)....

Nursing Care’s Technological Patient-Care Transformation

By John McPhelim, RN, BSc (Hons) Posted: March 1, 2019 Nursing—particularly communication—in lung cancer care is transforming as a result of the innovative use of supportive...

Second Annual Lung Cancer Awareness Month to Publicize Research Advances and Hope

By Keightley Amen, BA, ELS Posted: October 2017 This November, survivors around the world will celebrate the second annual Lung Cancer Awareness Month (LCAM) Consortium. Together,...

Improving Clinical Trials Through Clinician, Patient Use of Social Media

By DR Camidge Posted: March 1, 2019 The National Cancer Institute featured a workshop in June 2018 titled “At the Crossroads of Social Media and Clinical...

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