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Advocacy & Survivorship

Information from lung cancer advocates and personal experiences shared by lung cancer survivors.

Letter to the Editor: Patient-Driven Research

By Jill Feldman, EGFR Resisters Co-Founder Posted: December 11, 2019 I was so glad to see the article by Dr. Amy Moore on PDX models in the...

The Lung Cancer Research Foundation and Free to Breathe Merge to Fight Lung Cancer

Posted: December 2017 Effective September 30, 2017, the Lung Cancer Research Foundation and Free to Breathe have merged organizations, with the goal of closing the...

A Balancing Act: Managing Patients’ Expectations

By Leah Lawrence Posted: December 11, 2019 Many patients newly diagnosed with lung cancer have difficulty navigating the world of cancer when unexpectedly and unwillingly thrust...

Memoir Resonates with Oncologists and Patients with Lung Cancer

By Lori Alexander, MTPW, ELS, MWC How does a person with stage IV lung cancer live a meaningful life? That’s the question Paul Kalanithi explores...

From Patient to Patient Research Advocate: The STARS Journey

By Adam Mohrbacher Posted: December 11, 2019 With the rise of organized lung cancer patient advocacy groups,1 patients, advocates, and caregivers are now playing a larger...

Deb Violette, Lung Cancer Survivor and Advocate: Her Story

Posted: June 2017 Editor’s note: IASLC Lung Cancer News is committed to including the patient’s voice and experience of having lung cancer as part of...

STARS Patient Research Advocate Training Program Seeks Patients and Caregivers

By Adam Mohrbacher Posted: December 11, 2019 Patients with lung cancer and their caregivers are becoming more empowered and knowledgeable than ever. As a result, lung...

Profile of Advocacy: Shanghai Cancer Recovery Club

IASLC Lung Cancer News is pleased to present the following Q&A with the staff of Shanghai Cancer Recovery Club, an organization in Shanghai, China,...

Disrupting the Paradigm: Partnering With Oncogene-Focused Patient Groups to Propel Research

By Amy C. Moore, PhD, and Upal Basu Roy, PhD, MPH Posted: April 16, 2020 Genomic alterations drive more than 60% of adenocarcinoma cases of NSCLC.1...

Ellen V. Sigal, PhD: Leading the Cancer Research Advocacy Community

By Lori Alexander, MTPW, ELS, MWC® Ellen Sigal’s unsurpassed passion for cancer research advocacy was ignited 30 years ago after the devastating loss of her...

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