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Advocacy & Survivorship

Information from lung cancer advocates and personal experiences shared by lung cancer survivors.

Motivated, Engaged, and Organized: The New Molecular Cohorts of Lung Cancer

By D.R. Camidge Posted: June 2018 Just as physicians and scientists no longer treat lung cancer as a single disease because of molecular distinctions, patient advocacy...

After the Consultation: Social Media, Inter-Patient Communication, and Clinical Trials

By D. R. Camidge Posted: October 2018 Between March 2017 and April 2018, nearly 20,000 new members signed up for the Lung Cancer Survivors Support...

Lung Cancer Survivor Wins Trip to US NFL 2016 Pro Bowl

By Nicola M. Parry, DVM Lung cancer survivor Kathy Weber is an ardent ambassador for the International Association for the Study of Lung Cancer (IASLC)....

Nursing Care’s Technological Patient-Care Transformation

By John McPhelim, RN, BSc (Hons) Posted: March 1, 2019 Nursing—particularly communication—in lung cancer care is transforming as a result of the innovative use of supportive...

Second Annual Lung Cancer Awareness Month to Publicize Research Advances and Hope

By Keightley Amen, BA, ELS Posted: October 2017 This November, survivors around the world will celebrate the second annual Lung Cancer Awareness Month (LCAM) Consortium. Together,...

Improving Clinical Trials Through Clinician, Patient Use of Social Media

By DR Camidge Posted: March 1, 2019 The National Cancer Institute featured a workshop in June 2018 titled “At the Crossroads of Social Media and Clinical...

Lung Cancer Awareness Month Gathers Support and Momentum in Its Second Year

By Keightley Amen, BA, ELS Posted: December 2017 While many people remain unaware of the advancements in the field of lung cancer and research spending still...

GLCC and IASLC Form Partnership to Explore Progress in Lung Cancer Treatment

Posted: August 22, 2019 The Global Lung Cancer Coalition (GLCC) and the IASLC have formed a partnership to explore the progress that has been made in...

Advocating for Inclusion of the Patient’s Voice

By Lori L. Alexander, MTPW, ELS, MWC Posted: December 2017 Since 2006, the Bonnie J. Addario Lung Cancer Foundation (ALCF) has brought together a diverse group...

Letter to the Editor: Patient-Driven Research

By Jill Feldman, EGFR Resisters Co-Founder Posted: December 11, 2019 I was so glad to see the article by Dr. Amy Moore on PDX models in the...

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